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MPNE 2024
the
UNconference
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Friday, 24th May
UNconference teams meet in real life!
13.00- 18.00
Working groups meet- location dependent on track
The challenge for each team
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start with a real patient need
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work together in the preparation phase and co-design the Friday afternoon program
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produce something tangible
For the UNconference session on Saturday
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no more than â…“ presentation
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faculty from at least 3 different EU countries
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at least one part interactive
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something unexpected- we want to be surprised
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19:00 Networking dinner
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Saturday, 25th May
Time to share learnings and outcomes!
Each track team has 90 min to present their work and their results to the full conference audience
The 10’ advocacy problem clinic with Olga, Kay and Agati
During the day, we will have several 10’ advocacy clinic sessions- crowd-sourced intelligence on some of those tricky problems patient advocates face!
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9.00- 9.15 Welcome
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9.15- 10.45 Early Stage Melanoma
Program determined by Unconference track committee
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​10.45- 10.55 Advocacy clinic!
11.00- 11.30 Coffee break
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11.30- 13.00 Rare Melanomas
Program determined by Unconference track committee
​13.00- 13.10 Advocacy clinic!
13.15- 14.15 Lunch
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14.15- 15.45 Advanced Melanoma
Program determined by Unconference track committee
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​15.45- 15.55 Advocacy clinic!
16.00- 16.30 Coffee​
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16.30- 18.00 Survivorship and Quality of Life
Program determined by Unconference track committee
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​18.00- 18.10 Advocacy clinic!
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20.00 Conference Dinner
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Sunday, 26th May
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9:30 Retrospective- 10 years in review
MPNE pivotal moments, such as
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Our MPNE principles
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the 1st EU project…
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MPNErare and the power of a network
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Collaborating between cancers!
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Impact versus control
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V2A2 and patient agency
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We got the job….assuming responsibility when there’s no other option.
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‘To be that difficult patient so that others don’t have to be’ - survival shouldn’t depend on your ability to be a difficult patient
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Knowledge is protection
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What’s patient advocacy about? Well, that’s on us to define…
11.00- 11.30 coffee
11.30- 13.00 Workshop: the next 10 years! with Gilly Spurrier
Building on last year’s theory of change and impact assessment: which change do we want to see in the next decade?
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13:15 Lunch and departure