27/52 MPNE patient engagement 1-0-1
So, you are looking to engage with patients in 2023? The year has barely started but the first requests are coming in. Past experience...
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Melanoma
Melanoma is a cancer starting from melanocytes, the pigment-producing cells of the body.
Often, Melanoma starts on the skin with a mole. However, we have melanocytes in many places of our body.
Melanoma can therefore also start in the eye, on the palms of our hand and soles of our feet or on any inner surface of the body.
When Melanoma is discovered at a stage when it has spread, it can become impossible to identify the place where it has started.
Mostly, it is adults how are diagnosed with Melanoma and many of them are quite young- but we sometimes also see Melanoma in children.
Read this week's MPNE blog
We have been asked many times to document the way we work. And 2022's New Year's resolution 52 blogs, 1 per week with concepts, reflections and insights about MPNE clearly showed that time estimates aren't my strength- we only managed about half.
So we have expanded this to 2023's resolution - and added improving our time tracking to that list ;)
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MPNE at a Glance
We are European Melanoma patients, carers and patient advocates. We want to see as many Melanoma patients survive as possible. We have therefore built a system of networks that allows us to bridge language barriers and share Melanoma knowledge reliably and fast across large geographies. We work according to local priorities but shared working principles- our MPNE principles.
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'Never doubt that a small group of thoughtful, committed citizens can change the world; indeed,
it's the only thing that ever has.'
Margaret Mead
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