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MPNEconsensus 2024 
consensus meeting on data, AI and data-dependent business models 

Program to come
Logistics and timeline

SAVE THE DATE and check back soon-

program under rapid development

31st January- 2nd February 2024

Berlin 

Building on the concept of the first MPNE consensus meeting, we are delighted to invite you to MPNE CONSENSUS 2024.

 

Ambition

This time, the ambition is to develop a patient-centric consensus on the use of data, AI and related business models that captures the position of the patient community. 

 

BP4P- by patients for patients: MPNE is responsible for the overall organisation and the drafting of a white paper covering the discussion at the meeting and a final consensus document capturing the position of the MPNE community.

Co-creation- the event is co-created with partners from the space who want to discuss their work or projects with the cancer patient community. Confirmed so far are:

 

Fraunhofer Institute Berlin 

The Human Colossus Foundation 

(your logo not hear, pls send me one!!!)

Interested? Please reach out to discuss! 

 

Problem statement

 

Patients always get asked- or at least listened to- last. And that despite the fact that, thanks to GDPR, any type of data use ultimately relies on the end user’s agreement; societal support is therefore critical to the success to the EHDS. 

 

Not using data is no option.

With patients critically relying on progress in research and the successful implementation of research findings into routine healthcare through new practices, services or products, not leveraging the potential inherent in data use and artificial intelligence is irresponsible, in particular, in light of aging populations and increasing resource constraints.

Trust is good. Control is better. 

At the same time, patients and their families are those most likely to suffer from data breaches and misuse, e.g. here. Misuse can and will occur, even despite initial good intent. Therefore, systems that ensure effective anticipation and transparent, credible mitigation by design are essential to gain patients’ and citizens’ trust. With GDPR maximally distributing control to the level of the individual citizen, 'no-trust' environments that ensure protection by design and that ensure that citizens KNOW and not only HOPE they are safe will be essential prerequisites for a functioning EHDS. 

This consensus meeting will address topics that MPNE has identified as critical to the overall discussion on the usage of data, including 2ndary use, artificial intelligence and business models. 

  

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Program

So far, we anticipate 5 areas for discussion, each focusing on a topic of particular relevance to our community. 

Wednesday 

arrival and dinner

Thursday

9- 6pm

Friday 

9- 6pm

Saturday for patient advocates only 

9- 3pm

departure

Focal topics 

Part 1

Timing tbc

Risk/ benefit approaches to the use of data and AI - finding the right balance

Part 2

Timing tbc

Sharing data is hard, sharing genomic data is….maybe not even a good idea?

Part 3

Timing tbc

with The Human Colossus Foundation

‘Trust by design’: No- trust environments

  • Transparency, traceability and accountability

  • Protection against misuse- legal/ ethical 

  • Future-proofing our system

Part 4

with Fraunhofer Institute, iToBoS

Timing tbc

Artificial Intelligence we can trust

With Sebastian Roland Lapuschkin, Fraunhofer Institute and iToBoS

  • Trustworthy/ explainable AI

  • Open AI

  • Regenerative AI

Part 5

Timing tbc

Novel business models 

 

  • Novel business models that do not rely on owning datasets

  • Regulatory sandboxes- protected spaces for learning

  • Integration of digital business products into healthcare

Participation for patient advocates 

 

WHO SHOULD APPLY?

We are looking for Melanoma patients, carers and advocates with interest in the topic who are keen to listen and discuss with other stakeholders and technical experts on the topics and who want to contribute to draft a patient-centric consensus statement for our network. 

 

HOW DO WE SELECT?

As always, participation is upon application only. First and foremost, we select based on motivation: so what do you hope to learn this time? And how do you intend to use it for the benefit of the larger Melanoma community?

WHAT DOES IT COST?

Accepted participants will receive free registration and full-board accommodation for the nights of the meeting. Extra nights are at participants' own expenses and need to be arranged by the participants themselves.

COVID PROVISIONS

Venues are expected to comply with local COVID measures and so will the event. Please be aware that these differ from country to country. We expect participants to comply by local rules and ensure they are sufficiently vaccinated. In line with general rules, there will be no mask mandate anymore. Participation in the event is at the participant's own risk. 


​Travel needs to be arranged for by participants themselves but will be reimbursed up to the maximum amount of 350€ for economy/ 2nd class travel after full attendance of the conference. Please look for the best deals and keep the original receipts of your bookings. 

 

Cannot afford to pay ticket upfront? Please contact us.

 

No attendance, no receipt = no reimbursement. 

Location

Fraunhofer Institute Berlin

attendance

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