On April 28th-30th 2023, 89 Melanoma patients, carers and patient advocates from 24 countries within and outside the European Union met...
28/52 WHY before HOW- patient involvement in research
27/52 MPNE patient engagement 1-0-1
26/52 A systematic take on Patient Engagement
Sync not Sink our data – we need more cancer patient agency in health data use.
25/52 The 5 reasons to take patients in cancer research seriously
24/52 Return on Engagement
23/52 MPNE principles, a decision-aide
22/52 MPNE is about making a difference in Melanoma, not about being a patient organisation
21/52 Why the x/52 blog series: the post that should have come first
20/52 Directness and scale of impact
19/52 patient involvement: passive, active or consequential?
18/52 How to plan a great conference session
17/52 Knowledge is protection- part 2: keeping patient communities safe from fake news
16/52 Knowledge is protection - part 1
15/52 Of nodes, hubs and cores- the MPNE network explained
14/52 Patients need the best possible research
13/52 The three pillars of effective patient advocacy
12/52 The difference between patients and patient advocates
11/52 Form follows function. And it always starts with observation....