bettina Apr 193 minDesign Thinking for patient partnerships in researchOn Monday, 21st March 2022, Gilly and Bettina from MPNE attended the Conference on Civic Engagement in EU Missions. This was a high level...
bettina Apr 165 minPRESS RELEASEiToBoS 1st anniversary EU-funded project aims to create a holistic diagnostic and assessment tool for early detection of melanoma iToBoS...
bettina Apr 83 minInitiative of the European Commission: Supporting Ukraine, neighbouring EU Member States and MoldovaThe European Commission has set up a working group Supporting Ukraine, neighbouring EU Member States and Moldova to help coordinate the...
bettina Mar 275 min7/52 Patients' involvement in research- most value for your time, risks and sweet-spotsAt last weekend's Bootcamp21 in Berlin, we made real progress on mapping a patient-centric research ecosystem, got started on using...
bettina Mar 34 min6/52 A starter on Humanitarian Aid Right now, thousands are fleeing the war in Ukraine, among them cancer patients, including patients with Melanoma. Many of us are...
bettina Feb 64 min5/52 Patient Engagement versus Patients' Engagement in research. Sometimes one has this feeling that there is something just not quite right with a concept. It's like having a stone in your shoes. Your...
bettina Feb 53 min4/52 Papers don't cure patients. Why cancer patient advocates need to care about research policy.As a cancer patient, you are part of research. Even if you do not participate in a clinical trials or any other form of experimental...
bettina Jan 224 min3/52 Why we don't need patient empowerment. What we need is patient agency. Some thoughts. 'Patient Empowerment' must be one of the buzzwords of the day. As patient advocate it's definitely one of the standard topics one gets...
bettina Jan 203 min2/52 MPNE on access to cross-border healthcare and clinical trialsWe wrote this as submission on 10th February 2021 as feed-back to the EU Roadmap on Cross-border health Summary Under Directive 2011/24,...
bettina Jan 93 min1/52 Patients on a mission. How MPNE actually works. Finally out: HOW DOES MPNE WORK. MPNE, the Melanoma Patient Network Europe is not a patient organisation in the classic sense of the...
bettina Nov 21, 20217 min6/52 To solve a problem, love the problem, not the solution. Some personal musings on MPNE's 2nd principle: solutions, not problems. Reposted, with an introduction and tiny edits, for the occasion...
bettina Feb 26, 20191 minMelanoma Term of the DayLearning about Melanoma can be tricky as texts tend to be riddled with technical terms. The bad news is- they won't go away. The good...