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the network

philosophy

PHILOSOPHY 

 

We are a European network of Melanoma patients and patient advocate that together learns and collaborates to

 

  • effectively share knowledge relevant to Melanoma such as novel therapies, clinical trials, access schemes, research results, updates about regulatory and Health Technology Assessment decisions

  • build capacity by sharing successful advocacy projects, knowledge and resources and support others to get started in Melanoma advocacy

  • create a platform to interact as a group with other stakeholders and to serve as a neutral convenor- e.g. researchers and research funders, the European Medicines Agency, EMA, diagnostic and pharmaceutical companies

Agency

Our aim is agency in Melanoma: Melanoma patients who can make informed treatment choices and who can interact in an appropriate way with other stakeholders to drive and contribute to constructive solutions to the problems of the Melanoma community in Europe and beyond.

 

Access  

We believe that all European Melanoma patients should have access to accurate information in their own language and support appropriate to their cultural context- which is a formidable challenge considering the European cultural and language diversity.

Connection 

MPNE advocates are therefore the connectors between the European Melanoma network communicating in English and national networks in the respective native language. 

This allows us to communicate efficiently across many potential language barriers, collaborate where appropriate and learn from each other to address country-specific issues.

 

Community

As a community of volunteers, MPNE operates with a strong principle of subsidiarity. We believe that people have the highest chance to make a real difference for Melanoma patients when they work in areas they deeply care about and where they have access to particular insights or expertise. We can’t tell people what they should care about- but as community, we can help everyone to make progress on the topics they are most passionate about. 

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Vision

Access to prevention, early detection and effective treatment in Melanoma across Europe.

Mission

Systematically address problems faced by the European Melanoma community in a constructive, result-oriented and evidence-based manner.

Ambition

High-quality education, training and concepts so that Melanoma patients can actively shape their own care as well as the systems around them to the benefit of the entire Melanoma patient community- from research to policy.

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