the network

history

HISTORY

Early days- a EUROPEAN MELANOMA PATIENT NETWORK

MPNE was founded to continue the work of an earlier project, m-icab, the Melanoma Independent Community Advisory Board. M-icab was founded in 2010 upon the initiative of Patricia Garcia-Prieto and Quentin van Daele, both patients with metastatic Melanoma, and motivated by their own fight for access to innovative treatments in Melanoma by ECPC as a pilot project for adapting a modified version of the extremely successful ECAB concept of the HIV/ AIDS community for cancer patients.

Bettina Ryll got involved with Melanoma patient advocacy during and after her husband's diagnosis with Melanoma and took over the m-icab leadership after the death of the last remaining founder, Patrica Garcia-Prieto, in 2013. In order to account for the much broader advoacy activities surpassing the original ECAB concept, Bettina founded the Melanoma Patient Network Europe in 2013.

m-icab published the following white paper:

THE MELANOMA WHITE PAPER:

RESHAPING EU HEALTHCARE FOR MELANOMA PATIENTS:

A PAPER FROM THE INDEPENDENT COMMUNITY ADVISORY BOARD (M-ICAB) 2012

Vision

Access to prevention, early detection and effective treatment in Melanoma across Europe.

Mission

Systematically address problems faced by the European Melanoma community in a constructive, result-oriented and evidence-based manner.

Ambition

High-quality education, training and concepts so that Melanoma patients can actively shape their own care as well as the systems around them to the benefit of the entire Melanoma patient community- from research to policy.