Early days- a EUROPEAN MELANOMA PATIENT NETWORK
MPNE was founded to continue the work of an earlier project, m-icab, the Melanoma Independent Community Advisory Board. M-icab was founded in 2010 upon the initiative of Patricia Garcia-Prieto and Quentin van Daele, both patients with metastatic Melanoma, and motivated by their own fight for access to innovative treatments in Melanoma by ECPC as a pilot project for adapting a modified version of the extremely successful ECAB concept of the HIV/ AIDS community for cancer patients.
Bettina Ryll got involved with Melanoma patient advocacy during and after her husband's diagnosis with Melanoma and took over the m-icab leadership after the death of the last remaining founder, Patrica Garcia-Prieto, in 2013. In order to account for the much broader advoacy activities surpassing the original ECAB concept, Bettina founded the Melanoma Patient Network Europe in 2013.
m-icab published the following white paper:
RESHAPING EU HEALTHCARE FOR MELANOMA PATIENTS:
A PAPER FROM THE INDEPENDENT COMMUNITY ADVISORY BOARD (M-ICAB) 2012