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Krusenberg 2020​

NGS bootcamp

 

Information on old webpage here 

21st November 2020

virtual due to COVID

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Why this workshop?

 

  1. We are seeing more and more patients on our forums posting questions about their genomics reports and what it means in terms of their options

  2. We are unfortunately still losing half of our people with Stage 4 cutaneous Melanoma and more of those with rare Melanomas. Precision Medicine approaches offer additional treatment option for at least some- but only if you understand what the options are. 

  3. More and more of us are involved in research-related initiatives- reviewing manuscripts, clinical trial designs and research proposals, sit on scientific advisory boards, participate in and draft research projects, prepare submissions for HTAs, initiatives around data, organise patient conferences etc. 

 

NGS, Next Generation Sequencing, has not only become the workhorse of many scientific fields, including medical research, but is also used in clinical diagnostics as well as clinical trials. Novel therapies now offer real hope of survival for patients even with advanced disease- unthinkable as little as 10 years ago- but it will take considerably more research to save everyone. 

 

This workshop's topic will give a- very- condensed introduction to Next Generation Sequencing in Melanoma. Sessions will be a mix of lectures, hands-on (virtual) sessions and discussions. It's a new format and we want to test some things- but we know that you are used to that by now ;-). For those new here, have a look here.

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 We plan to cover 5 modules, more detail to come here as we are working on them. These modules will be introductory, with the option to expand later based on interest. 

 

1- Introduction to NGS

 

​2- WGS and CGP: Whole Genome Sequencing and

Comprehensive Genome Profiling 

 

3- Transcriptomes: RNAseq

 

4- Methylome: EpiSeq

 

5- Single Cell Sequencing

 

 

Program 21st November 2020

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09.00 - 11.30 Session 1

13.00 - 14.30 Session 2

15.00 - 16.30 Session 3

Who should apply?

This is a workshop for active experienced MPNEhubs and upon application only.

 

We are looking for European Melanoma advocates

1. who are active in Melanoma advocacy within their own country and/ or at European level and

2. who have demonstrated interest in the wider Melanoma/ advocacy community outside their own narrow field of work and who already are or who are planning to get involved in research activities. 

We are looking for advocates who want to make a difference and for that are willing to learn, work together and put in the effort before, during and after the workshop. 

 

The number of participants is limited to make sure we can run the interactive sessions.  

 

A sufficient working knowledge of English is essential to participate in the discussion. 

 

 

How does this work?

1. Attendance of this workshop is upon application only. Applicants will need access to a desktop computer or laptop (so no tablet not enough) for the working sessions.

2. Selection: The organising committee will select participants based on their motivation with regards to supporting Melanoma patients and being involved in research activities.

3. Acceptance: Selected applicants will need to confirm their place at the workshop and agree to attend the full event.

 

 

Important note- this is an online event

Organisers

Gilliosa Spurrier, MPNE

Violeta Astratinei, MPNE

Bettina Ryll, MPNE

Fredrik Östman, MPNE​

 

The small print

Decisions about workshop participation will be based on suitability for the workshop as well as scope of the Melanoma patient network Europe and are final.

This event was made possible thanks to the support of

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