It all started with the observation that the latest medical information on Melanoma was only available in English and was only accessible...

A common patient advocacy ask is: more research into our condition. While there is an obvious logic to it- we will not progress in areas...

When observing what type of expertise and capabilities made patient advocates particularly effective in their work, I found that these...

There is no universally agreed definition on what a patient advocate is. As the term is not protected- unlike most professional titles-...

Work in progress- some recent thinking. 'Arguing things through' is one of the most helpful activities any community can do. And as...

As a community on a mission to improve the chances to survive Melanoma and to minimise the impact of the disease on people and their...

MPNE, the Melanoma Patient Network Europe, works according to an approach that is similar to the one in mission-driven innovation as...

Part of the series 'How MPNE works' We have noted that even networks members who have been with us for a long time do not fully...

On Monday, 21st March 2022, Gilly and Bettina from MPNE attended the Conference on Civic Engagement in EU Missions. This was a high level...

iToBoS 1st anniversary EU-funded project aims to create a holistic diagnostic and assessment tool for early detection of melanoma iToBoS...

The European Commission has set up a working group Supporting Ukraine, neighbouring EU Member States and Moldova to help coordinate the...

At last weekend's Bootcamp21 in Berlin, we made real progress on mapping a patient-centric research ecosystem, got started on using...

Right now, thousands are fleeing the war in Ukraine, among them cancer patients, including patients with Melanoma. Many of us are...

Sometimes one has this feeling that there is something just not quite right with a concept. It's like having a stone in your shoes. Your...

As a cancer patient, you are part of research. Even if you do not participate in a clinical trials or any other form of experimental...

'Patient Empowerment' must be one of the buzzwords of the day. As patient advocate it's definitely one of the standard topics one gets...

We wrote this as submission on 10th February 2021 as feed-back to the EU Roadmap on Cross-border health Summary Under Directive 2011/24,...

Finally out: HOW DOES MPNE WORK. MPNE, the Melanoma Patient Network Europe is not a patient organisation in the classic sense of the...

Some personal musings on MPNE's 2nd principle: solutions, not problems. Reposted, with an introduction and tiny edits, for the occasion...

Learning about Melanoma can be tricky as texts tend to be riddled with technical terms. The bad news is- they won't go away. The good...